I am going to try and use this page to add any news or information about chiari and related disorders. If any one has any news they would like to share pleasae let me know.

JULY 2010

This website was started as a project for a degree.  I was working on my degree before being diagnosed with Chiari and continued to work on it after my diagnosis.  Although I have spent a great deal of time in and out of hospitals with numerous problems i still wanted to finish my degree.  on Jule 13th I graduated in Liverpool, United Kingdom with an upper second class degree with honours in Education Studies and Special Needs.

This announcement is not just to blow my own trumpet but to also let people know that you can still achieve your goals even with this condition.  I may be very negative about this condition (and the surgery) but i still never gave up on my degree and am proud to have finished it.  I have been given ill health retirement from work in a job i loved but this will not stop me giving as I hope one day I will be able to return to a new job.

Good luck to everyone else going through some hard times - dont give up!

 

9th MARCH 2010

There is a meeting this Monday at The Walton Centre in Liverpool 6.30-8.30pm - ask for the Sutcliffe Kerr room upon arrival.

Two future dates of meetings are:-  

·        Tuesday 15th June - Dr Anita Rose - Consultant Neuropsychologist. 'Positive coping strategies'.

·        Wednesday, 13th October - Alison Cox - Pain Nurse Specialist. 'Neuropathic pain'.

I am not completely sure of these dates so if you wish to check them please phone PALS at Walton http://www.thewaltoncentre.nhs.uk/

 

JAN 2010

Apologies but the website has had some problems the beginning of the year.  I have fixed it all now so hopefully things will get back to normal!

If anyone would like to contribute or offer any views please feel free to contract me through here or the forum.

 

OCT 2009

I have just added a new forum - please click the FORUM page which can be found on the front page.

thanks

 

Sept 2009

Earlier this year there was a petition set up by a fellow chiari sufferer.  Please click the here to read the petition and the governments response to it.

Well done Jenny for raising awareness!